Health 2.0, Patients as Partners

This story by Catherine Arnst examines some recent efforts to engage patients in the research and development process as active participants as opposed to just data points to be enrolled, followed, and reported on.  It’s an intruiging idea, explored by companies like PatientsLikeMe, to create social networking sites to foster information sharing and patient activism in order to potentially accelerate the pace of research and learning about new drugs and treatment regimens.  The story can be read here.

It is certainly becoming more and more clear that patients want to take charge of their health and play a more active role in identifying and incorporating new treatments and options to match their own personal profiles, both psychological and biological.

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• Health 2.0, Patients as PartnersCan empowering patients change the nature of drug research and accelerate progress?
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• The ACCESS ActAn Introduction to and education on the Access, Care, Compassion, and Ethics for Seriously Ill Patients Act, referenced as S. 3046 and H.R. 6270

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